Ulster Unionist Assemblyman Roy Beggs MLA has encouraged residents of East Antrim to get involved with a NI Rare Diseases public consultation that is being carried out by the Department for Health, Public Safety and Social Services.
Roy Beggs MLA, who attended the consultation launch at Stormont, said “I would urge as many individuals to respond to the consultation. The strategy aims to ensure that people living with a rare disease have access to the best care and treatment that health and social services and relevant partners can provide.”
The Department of Health, Social Services and Public Safety (DHSSPS) published a Statement of Intent in June 2014 which set out the Department’s approach to delivering the 51 commitments in Northern Ireland.
DHSSPS in association with members of the NI Rare Diseases Stakeholder Group (NIRDSG) have now developed the draft Northern Ireland Rare Diseases Implementation Plan. It sets out in detail how the Department proposes to deliver the 51 commitments, in partnership with the wider Health and Social Care system in Northern Ireland.
Roy Beggs added “You can view the consultation at http://www.dhsspsni.gov.uk/showconsultations?txtid=74325. Completed responses should be emailed to: RDIP@dhsspsni.gov.uk or forwarded by post to: NI Rare Diseases Implementation Plan Consultation, Room 1, Annex 1, Secondary Care Directorate, DHSSPS , Castle Buildings, Stormont, Belfast, BT4 3SQ.”